Dignified palliative long-term care: An interpretive systemic framework of end-of-life integrated care pathway for terminally ill Chinese older adults
Author(s)
Kan, Wing Shan
Author(s)
Ho, A. H. Y.
Luk, J. K. H.
Chan, F. H. W.
Ng, W. C.
Kwok, C. K. K.
Yuen, J. H. L.
Tam, M. Y. J.
Chan, C. L. W.
Date Issued
2016
Publisher
Sage Publications
Journal
American Journal of Hospice and Palliative Medicine
Volume
33
Issue
5
Start page
439
End page
447
Abstract
Purpose:
To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents.
Methods:
Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups.
Results:
Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions).
Conclusions:
These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.
SFU Affiliated Publication
No
Availability at SFU Library
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